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A little fyi...

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  • A little fyi...

    So, I made a post in an Obama thread here at FFXIO.

    http://www.ffxionline.com/forums/off...tml#post822768

    I revealed that I will be needed a double transplant. Feba inquired as to why, so I made this thread so as not to derail the other one.

    This is just some information about the disease I have. It's called Polycystic disease. It's a hereditary disease though it can develop spontaneously as mine did. So yes, I am a mutant.

    Basically, fluid filled cysts develop and grow on your internal organs. They mainly hit the kidneys, liver, ovaries, and brain. It has hit me in my kidneys and liver so far. This disease can be very mild for some and extreme to others. Mine leans more towards the....well on a scale of 1-10 its about a 8. Mine started creating havoc when I was in my late 20's and my doctor told me that I might not make it past 40 (HAH in your face!) and definately not to 60 (that sir remains to be seen!). Some people have this disease and never need a transplant (lucky buggers!) or don't have any problems until late in life (again, I was gyped!).

    There are lots of annoying things with this disease and the biggest for me is PAIN. You also get kidney stones (MORE pain!), uncontrollable high blood pressure, issues when organs become very large, severe anemia, blah blah blah. It's a bitch. Believe it or not, its a pretty common disease too even though not many have heard about it. So I'm spreading the word! Maybe sometime in your life, you'll run into someone that will say they have it or a loved one of theirs has it and you'll be able to say "Hey, I know what that is!" Sounds corny but I really enjoy when I run into people that have actually heard about it.........and that includes medical professionals! I've met so many that go "Oh I've heard the name but I had no idea....." ><

    The following are GRAPHIC (not dirty, sorry guys ) PICTURES of polycystic kidneys. If you don't like this kind of stuff DO NOT LOOK!

    Awwww look at the babies!


    Football anyone??


    One kidney is supposed to be as big as a fist
    Originally posted by Feba
    But I mean I do not mind a good looking man so long as I do not have to view his penis.
    Originally posted by Taskmage
    God I hate my periods. You think passing a clot through a vagina is bad? Try it with a penis.
    Originally posted by DakAttack
    ...I'm shitting dicks out of my eyeballs in excitement for the next bestgreating game of all time ever.

  • #2
    Re: A little fyi...

    Without having read said post... are you in line for a transplant?
    signatures are for pussies mew mew mew, here's mine

    Comment


    • #3
      Re: A little fyi...

      No sir, not yet. Unfortunately, transplants are hard to come by and because of this you have to be damn near death to get on that list. So suffer as I may, it will be some time before they put me on it. Funny thing is, you can be fine one day and suddenly go downhill fast OR you can linger a long time. There's just no way to predict it. But my son and my husband are going to be tested and have generously said they will donate. My son has a higher chance of being a better match but my husband is my blood type so you never know. My daughter was born with an underdeveloped kidney so she can not donate that but could possibly donate a piece of her liver. She is on the fence about it and my extended family has said no. And with this post, I must go try and get some rest. Nite nite FFXIO and Bal .
      Originally posted by Feba
      But I mean I do not mind a good looking man so long as I do not have to view his penis.
      Originally posted by Taskmage
      God I hate my periods. You think passing a clot through a vagina is bad? Try it with a penis.
      Originally posted by DakAttack
      ...I'm shitting dicks out of my eyeballs in excitement for the next bestgreating game of all time ever.

      Comment


      • #4
        Re: A little fyi...

        The pictures are actually sort of cool, in an alien spaceship sort of way.

        Originally posted by TheGrandMom View Post
        No sir, not yet. Unfortunately, transplants are hard to come by and because of this you have to be damn near death to get on that list.
        Here's to your suddenly going downhill fast!

        I think.

        Comment


        • #5
          Re: A little fyi...

          Wow Feba, you're OK.

          Maybe... ?

          Originally posted by TheGrandMom View Post
          She is on the fence about it and my extended family has said no.
          What the shit kind of family is that?
          signatures are for pussies mew mew mew, here's mine

          Comment


          • #6
            Re: A little fyi...

            Holy hell, how the hell do your organs have any ROOM if they get that big <_<;;;
            Cleverness - Hades
            75BLU/75RDM/75NIN/60SAM/59SMN
            DRK/NIN/WHM/BLM/SCH/WAR/PLD subs

            Comment


            • #7
              Re: A little fyi...

              I'm pretty sure those are extreme cases.
              signatures are for pussies mew mew mew, here's mine

              Comment


              • #8
                Re: A little fyi...

                Hiya,

                My friend has polycystic ovaries and suffers terribly with the pain and stuff. It's one of the least friendly conditions to suffer from

                Grandmom, although you are in pain & stuff I hope that life is kind enough for you to never be in the position where a transplant is necessary & that they find a better way of controlling it or, even better, a cure.
                "The average, healthy, well-adjusted adult gets up at seven-thirty in the morning feeling just plain terrible." - Jean Kerr

                Comment


                • #9
                  Re: A little fyi...

                  Just get a WHM to cast Viruna/Erase. Problem solved!
                  Cleverness - Hades
                  75BLU/75RDM/75NIN/60SAM/59SMN
                  DRK/NIN/WHM/BLM/SCH/WAR/PLD subs

                  Comment


                  • #10
                    Re: A little fyi...

                    The following are GRAPHIC (not dirty, sorry guys ) PICTURES
                    /shakes fist

                    Curses! Foiled again!

                    So yes, I am a mutant.
                    Thank goodness you never told that one fellow that not only are you a hawt older woman who rides a motorcycle, you're a mutant too. Otherwise you'd be fighting off the pimply teenagers all day.

                    She is on the fence about it and my extended family has said no.
                    Soooo.... She's living at your house, having you take care of her kids and who knows what else... While donating something IS a very personnal and hard choice to make, just hearing what you've said about your daughter and all, my thought is way to show gratitude kid.

                    Here's to hoping for a speedy recovery, be it through transplant, sudden disappearance of the issues, whatever.

                    On the healthcare front, I really do hope a GOOD change comes. Hopefully a change that doesn't include upping taxes to pay for it completely or cutting parts out of healthcare plans.

                    I'm generally in favor of open markets, capitalism and all that. But the healthcare field is one of the few areas where it fails horribly. A person should not be asked "How much are you willing to pay to live a life free of pain? How much are you willing to pay to live?"

                    Sounds like you could use some funy stuff, so in case you might not be aware of some of these, might I be so bold as to recommend:

                    Girl Genius Online Comics
                    http://www.giantitp.com/comics/oots0001.html


                    Since I'm recording my classes I could also type up or upload some of the amusing stories my teacher is telling us about airlines and pilots that he's flown with. It'll either make you fall over laughing or have you too scared to ever get on a plane again


                    You have the right to remain silent, anything you say can and will be misqouted and then used against you.

                    I don't have a big ego, it just has a large mouth.

                    Comment


                    • #11
                      Re: A little fyi...

                      Originally posted by Balfree View Post
                      I'm pretty sure those are extreme cases.
                      No Bal, thats what most polycycstic kidneys look like. You usually end up losing 20 pounds if they take them out.

                      Originally posted by Vyuru View Post
                      Thank goodness you never told that one fellow that not only are you a hawt older woman who rides a motorcycle, you're a mutant too. Otherwise you'd be fighting off the pimply teenagers all day.
                      HAHAHAHAHAHAHAHA



                      Originally posted by Vyuru View Post
                      Sounds like you could use some funy stuff, so in case you might not be aware of some of these, might I be so bold as to recommend:

                      Girl Genius Online Comics
                      Giant In the Playground Games


                      Since I'm recording my classes I could also type up or upload some of the amusing stories my teacher is telling us about airlines and pilots that he's flown with. It'll either make you fall over laughing or have you too scared to ever get on a plane again
                      Ty, ty! I always like to bookmark sites like that and then on the days I'm throwing myself a pity party I just go read them and get myself out of my funk. I would love to hear some of these stories you speak of! I have a sister that has to fly regularly and shes scared to. I could terrorize her with these stories....hey! I have to do something with all this time I have on my hands!
                      Originally posted by Feba
                      But I mean I do not mind a good looking man so long as I do not have to view his penis.
                      Originally posted by Taskmage
                      God I hate my periods. You think passing a clot through a vagina is bad? Try it with a penis.
                      Originally posted by DakAttack
                      ...I'm shitting dicks out of my eyeballs in excitement for the next bestgreating game of all time ever.

                      Comment


                      • #12
                        Re: A little fyi...

                        Originally posted by Balfree View Post
                        What the shit kind of family is that?
                        Well considering her husband steals exp camps from her... I can imagine how pleasant her extended family is.


                        Wii code: 6851 9579 6989 9039

                        Comment


                        • #13
                          Re: A little fyi...

                          So you have those aliens inside you mom... ? Is it a functioning kidney or is it dead after this?
                          signatures are for pussies mew mew mew, here's mine

                          Comment


                          • #14
                            Re: A little fyi...

                            Well it depends. Yes, my kidneys are like that, I've had them measured. Yes, my kidneys still function but I've only got around 20% function left. (But I know that number is off since I haven't been checked in 6 months and its been a rough 6 months.) Some people choose to keep their barely functioning huge kidneys after transplant. They do shrink over time but are still quite large but its very scary to think 'once these are gone, thats it'. If they stop fully functuioning, they do remove them.
                            Originally posted by Feba
                            But I mean I do not mind a good looking man so long as I do not have to view his penis.
                            Originally posted by Taskmage
                            God I hate my periods. You think passing a clot through a vagina is bad? Try it with a penis.
                            Originally posted by DakAttack
                            ...I'm shitting dicks out of my eyeballs in excitement for the next bestgreating game of all time ever.

                            Comment


                            • #15
                              Re: A little fyi...

                              Man... mommy you hang in there ><
                              signatures are for pussies mew mew mew, here's mine

                              Comment

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